Two Boston University School of Public Health (BUSPH) researchers are co-principal investigators on the Life Impact Burn Recovery Evaluation, or LIBRE, a five-year project aimed at creating an innovative computer-adaptive tool for measuring the progress of burn survivors.
Dr. Lewis Kazis, professor of health policy and management, directs the BUSPH Center for the Assessment of Pharmaceutical Practices and is co-principal investigator on the LIBRE Questionnaire project, along with Dr. Alan Jette, professor of health policy and management and director of the BUSPH Health & Disability Research Institute.
Funded by a $2.4 million grant from the National Institute of Disability and Rehabilitation Research (NIDRR), LIBRE aims to measure the aspects of recovery that aren’t purely physical. Researchers have spent the last year holding focus groups with burn survivors and conducted in-depth interviews to generate a comprehensive pool of questions.With guidance from a team of rehabilitation experts and a team-led analysis of established research, LIBRE researchers isolated four major areas of concern for new burn survivors: social and community life, relationships with family and friends, romantic relationships, and work life.
“We are interested in identifying what some of the barriers might be, and then possible intervention strategies,” said Dr. Kazis “We have an adage in the measurement world that if you cannot measure it you cannot change it. So much of this becomes a question of whether you can pinpoint the needs of a burn survivor and then begin to provide them—and clinicians—with that information.”
To read more about the project, go to: http://www.bu.edu/sph/2015/03/06/life-after-the-burn-developing-an-effective-tool-to-measure-recovery-of-burn-survivors/