Evidence-Based Guideline on Hemophilia Care: A Model for Rare Disease Guidelines
The optimal care delivery model for people with hemophilia is integrated care. This approach requires a high degree of collaboration and communication by all healthcare team members to establish a comprehensive treatment plan, and is supported by a number of national and international guidance documents. However, the effects of integrated care on patient outcomes have not been studied thoroughly. The National Hemophilia Foundation (NHF) initiated the development of an evidence-based clinical practice guideline to identify best practices in delivery of care for people with hemophilia in order to improve patient outcomes. In this webinar, presenters will describe the research that formed the basis for the guideline, and how the guideline will be put into action, including:
NHF partnered with McMaster University to ensure that the methods used to develop the guideline adhered to the highest principles in evidence review. This guideline meets the standards of the National Guideline Clearinghouse and the Institute of Medicine. It has been endorsed by the World Federation of Hemophilia, the American Society of Hematology, and the International Society on Thrombosis and Haemostasis.
Learning Objectives: At the end of the presentation, the participants will be able to
This webinar is free and open to public health professionals, clinicians, and researchers who desire more information about hemophilia and blood disorders. Advance registration is required and the number of attendees is limited.