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CDC Webinar – Women and Girls with Bleeding Disorders: Challenges in Diagnosis and Management

Guest Presenter

Dr. Robert Sidonio

Associate Director of Hemostasis and Thrombosis, Children’s Healthcare of Atlanta

Assistant Professor of Pediatrics, Emory University Hospital


Over the last decade, there has been increasing awareness among healthcare providers that adolescent girls and women with bleeding symptoms should be evaluated for congenital bleeding disorders, such as von Willebrand disease (VWD), hemophilia carrier status, qualitative platelet disorders and rare bleeding disorders. The number of women and girls diagnosed with bleeding disorders and cared for at federally supported Hemophilia Treatment Centers grew by nearly 350% in the decade after 1990 and continues to grow exponentially. Unfortunately, diagnostic delays and misdiagnoses in this population are still common.

In a U.S. Centers for Disease Control and Prevention (CDC) survey in 2004, women with VWD reported an average of six bleeding symptoms before receiving a diagnosis of VWD. This study also demonstrated an average time of 16 years from the onset of the first bleeding symptoms to clinical recognition of a bleeding disorder.  Gender-specific bleeding assessment tools have been created to help with the rapid identification of women and girls who are at highest risk for bleeding disorders and, therefore, should receive diagnostic testing. However, hematologists, emergency department physicians, and ob-gyn providers continue to lack awareness of the usefulness of these assessment tools.

Learning Objectives

At the end of this webinar, attendees will be able to complete the following:

► Describe the prevalence of congenital bleeding disorders in women and girls.

► Describe the utility of bleeding assessment tools in diagnosis of women and girls with congenital bleeding disorders.

► List the management strategies for heavy bleeding and postpartum t bleeding in women and girls with congenital bleeding disorders.

Advance registration is required.  Visit here.