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Member Research & Reports

Member Research & Reports

Georgia Southern: Part of National Consortium – Translating Evidence-based Guidelines into Practice for Sickle Cell Disease

The manuscript authors state that “In 2016, the National Heart, Lung, and Blood Institute (NHLBI) funded the Sickle cell Disease (SCD) Implementation Consortium (SCDIC) multi-site research study with program leadership from the Division of Blood Resources (DBDR), scientific collaboration from the Center for Translation Research and Implementation Science (CTRIS), and co-funding from the National Institute of Minority Health and Health Disparities (NIMHD). The RFA-HL-16-010 was written with the goal to support multi-level and multi-component interventions to address the quality gap in the delivery of care for SCD and to develop a longitudinal registry of patients with SCD.”

Also, “the complex landscape of care for adolescents and adults with SCD is characterized by barriers and facilitators that exist at multiple levels. The SCDIC has stimulated the sickle cell community with the emerging field of implementation science as a vital step in achieving NHLBI’s goal for the evidenced-based management of SCD for vulnerable populations, and for all. The innovative research infrastructure of the SCDIC will foster the development of new approaches to care and enable important progress toward improving the health and well-being of individuals with SCD informed by the best research evidence.”

The sickle cell disease implementation consortium: Translating evidence-based guidelines into practice for sickle cell disease” was published in American Journal of Hematology, co-authored by Dr. Joseph Telfair, Georgia Southern University Jiann Ping Hsu College of Public Health.