Mr. James E. Valentine, an alumnus of the Johns Hopkins Bloomberg School of Public Health, has been named a 2019 RARE Champion of Hope by Global Genes, a global rare disease advocacy organization. The RARE Champion of Hope award recognizes advocates for rare disease, people who inspire through innovation, research, compassion and a spirit to effect positive change.
Mr. Valentine received his MHS in Health Policy from the Bloomberg School in 2010. He also has a JD from the University of Maryland Carey School of Law.
Mr. Valentine worked as a patient liaison at the U.S. Food and Drug Administration (FDA) before going into private practice with the law firm Hyman, Phelps & McNamara. He has represented over two dozen rare disease patient advocacy groups, assisting them in engaging with drug developers and regulators. Mr. Valentine is also working on novel methodologies for capturing patient experience data.
The nine awardees were selected from over 100 nominations. Mr. Valentine will accept his award at the 8th Annual RARE Patient Advocacy Summit on September 20th. The summit is the world’s largest education event for rare disease patients and advocates.Friday Letter Submission, Publish on July 19