Dr. Jennifer Wolff, professor in the department of health policy and management at the Johns Hopkins Bloomberg School of Public Health, has received a five-year, $2.5 million grant from the National Institute on Aging. Dr. Wolff will conduct a randomized controlled trial of a communication intervention in primary care that engages family caregivers in advance care planning of older adults with cognitive impairment.
Alzheimer’s disease and related dementias are among the most disabling and costly of all health conditions. However, persons with dementia often do not receive a diagnosis, and are less likely to complete an advance directive than persons without dementia. Family caregivers of persons with dementia are often heavily involved in scheduling and attending medical visits and providing care in the community, but are commonly not well prepared to assume a role in medical decision-making.
The study will seek to facilitate advance care planning between primary care providers, patients and family caregivers by incorporating a range of strategies known to improve communication outcomes. Findings from the study will provide critical information to improve care planning in primary care settings, places where persons with Alzheimer’s disease and related dementias are often diagnosed and medically managed.
Dr. Wolff is the Eugene and Mildred Lipitz Professor and Director of the Roger C. Lipitz Center for Integrated Health Care. She is a leader in research and policy relating to the care of persons with complex health needs and disabilities.Tags: Friday Letter Submission, Publish on October 11