The University of Maryland and the Reagan-Udall Foundation (RUF) for the Food and Drug Administration (FDA) are pleased to announce a new collaboration for the Big Data for Patients (BD4P) program. Headed by Dr. Stephen Roth, Associate Dean for Educational Innovation at the University of Maryland’s School of Public Health, a small team of education and instructional design experts will develop curriculum, structure, delivery and evaluation components for the BD4P advocate education program.
The ultimate goal of BD4P is to develop a community of patient advocates who are scientifically literate in the basic concepts of big data and can provide informed patient perspectives in health data initiatives. This program aims to encourage active patient participation and partnerships in health data research efforts. Big data in medicine is patient data; patients’ support and participation is needed to ensure it is used in patient-centered ways and yields the greatest benefit to patients themselves.
The UMD team will work with the BD4P Program Content workgroup and advisors to refine objectives, adapt content suggestions and recommend resources for a curriculum intended for a multiple-day pilot workshop later this year.
Interested members of the public will have an opportunity to provide input and comments on the program, including draft curriculum, at an upcoming BD4P Stakeholder meeting to be held June 9 in Washington, DC. Additional meeting information will be announced soon.
For more information, please contact BD4P@ReaganUdall.org(link sends e-mail).