A novel web-based speech therapy program for people with language problems due to dementia significantly improved their ability to recall words they had “lost,” reports a new Northwestern Medicine study.
One woman could once again identify the tulips and daffodils in her garden. And a man restored his ability to issue commands to his border collie to herd the sheep on his farm and order his favorite meal from the drive-through at Steak ‘n Shake.
People with Alzheimer’s dementia or primary progressive aphasia often have language problems, struggling to retrieve the name of a grandchild or find the words to order dinner in a restaurant. But their aphasia often goes untreated because most speech-language pathologists are trained to help children or individuals with stroke, not those with dementia.
Northwestern scientists are closing that gap by developing a new program – called the Communication Bridge — in which specially trained speech-language pathologists offer personalized therapy over the web to those with dementia-related language impairment, also known as aphasia.
A new pilot study shows the participants made significant improvement in recalling the words they had found troublesome after two months of therapy, and maintained that improvement after six months.
One Colorado woman, after eight weeks of therapy and practice with virtual flashcards, could once again name the flowers in her garden and identify her golf swings. A woman from Alabama was able to retrieve the names of her grandchildren.
“These improvements are especially exciting because in neurodegenerative diseases we would expect declines, but these dementia patients are holding onto these gains,” said lead author Dr. Emily Rogalski, associate professor at the Cognitive Neurology and Alzheimer’s Disease Center at Northwestern University Feinberg School of Medicine.
The new study showing the feasibility and early results of the program is published in the journal Alzheimer’s & Dementia: Translational Research & Clinical Interventions.
“There’s a misconception that speech-language pathologists can’t help people with dementia, but, in fact, they have many tools that can be helpful,” Dr. Rogalski said.
Individuals with dementia-related aphasia are able to learn, she noted. “This is not a cure, but we may be able to delay some of the progression and maximize that person’s remaining abilities so they can compensate as long as possible,” Dr. Rogalski said.
The program starts with an evaluation to determine a person’s challenges and strengths. Then it includes eight therapy sessions with a specialized speech pathologist via a secure video-chat platform, videos to reinforce what was taught during the sessions and home assignments like virtual flashcards and a communication notebook to support language memory.
“It doesn’t matter where the patient lives or where the speech-language pathologist lives. You can get the same quality of care anywhere in the world,” Dr. Rogalski said, noting the program just enrolled a person from Singapore.
The program also helped participants read novels again, a pleasure some of them had lost to their disease, by simultaneously listening to the book on audio and reading it.
The Communication Bridge grew out of conversations with dementia patients and their families who traveled from around the country to the Northwestern clinic for evaluation and treatment. When they returned home, they were frustrated that they didn’t have access to a specialized speech-language therapist.